{"id":98603,"date":"2024-01-16T11:13:25","date_gmt":"2024-01-16T10:13:25","guid":{"rendered":"https:\/\/podcast.rs\/?p=98603"},"modified":"2024-01-16T12:42:27","modified_gmt":"2024-01-16T10:42:27","slug":"rare-and-share-ep19-kakav-je-osecaj-kad-imas-bolest-kraljeva-mag-farmacije-nadezda-pejovic","status":"publish","type":"post","link":"https:\/\/podcast.rs\/en\/rare-and-share-ep19-kakav-je-osecaj-kad-imas-bolest-kraljeva-mag-farmacije-nadezda-pejovic\/","title":{"rendered":"Rare and Share EP19 | Kakav je ose\u0107aj kad ima\u0161 &#8222;bolest kraljeva&#8220;? | Mag farmacije Nade\u017eda Pejovi\u0107"},"content":{"rendered":"<p>Go\u0161\u0107a u 19. epizodi podcasta <a href=\"https:\/\/www.youtube.com\/hashtag\/rareandshare\">#rareandshare<\/a> je <strong>Nade\u017eda Pejovi\u0107, predsednica Nacionalnog udru\u017eenja porfirija Srbije. <\/strong><\/p>\n<p>Ovde razgovaramo sa onima koji su pokretali lavine doga\u0111aja, menjali okvire, pomerali granice do tada poznatog. <\/p>\n<p>\u017delimo da razgovaramo o temama koje su va\u017ene onima koji se suo\u010davaju sa retkim izazovima kao \u0161to su pravni i zakonski okviri, aspekat psiholo\u0161ke podr\u0161ke, medicinska dostignu\u0107a i nove studije. <\/p>\n<p>Nade\u017eda je prenela put od prvog testa, do &#8222;zaslu\u017eene&#8220; dijagnoze. <\/p>\n<p>Razgovarale smo o motivaciji za registrovanje Udru\u017eenja i o te\u0161kim \u017eivotnim odlukama, kao \u0161to je planiranje porodice s obzirom na dijagnozu. <\/p>\n<p>Ako vas zanima vi\u0161e detalja, pogledajte celu epizodu, na profilima dru\u0161tvenih mre\u017ea mo\u017eete prona\u0107i vi\u0161e detalja o dijagnozi i tipovima porfirije, a ukoliko imate dilema, slobodno kontaktirajte Udru\u017eenje kroz broj telefona i email koji su objavljeni na njihovoj Facebook stranici: <a href=\"https:\/\/www.facebook.com\/profile.php\">https:\/\/www.facebook.com\/profile.php<\/a><a href=\"https:\/\/www.youtube.com\/redirect?event=video_description&amp;redir_token=QUFFLUhqbjVRUDJYQ0lPYjNwU3BvWW9TN1RXOWNnQ1k4UXxBQ3Jtc0tuVGxqUlE1OWY0dmZrSWdubVFrX2dmZHQ0QnMtc3V4bXk3UjhiSHhDQm1xeTFqQmV1NUFPbmF5cmduOER5d0dVNlN6UVJieExzb25XanBndUJ1TFA2MVVpSUdDbkVySjB6c2Q0YnZ3WmFnNEotRVJQSQ&amp;q=https%3A%2F%2Fwww.facebook.com%2Fprofile.php%3Fid%3D100091944161299&amp;v=FNcxfJ7oIMA\">?&#8230;<\/a> <\/p>\n<p>&#8212; Program sprovodi Trag fondacija (@tragfondacija), uz finansijsku podr\u0161ku Vlade Ujedinjenog Kraljevstva (@UKinSerbia). <\/p>\n<p>&#8211; Projekat Rare and Share podcast je realizovan u okviru programa \u201eAktivne zajednice\u201c koji finansira Vlada Ujedinjenog Kraljevstva, a sprovodi Trag fondacija &#8211; Izradu ovog materijala je finansirala Vlada Ujedinjenog Kraljevstva, izneti stavovi nu\u017eno ne odra\u017eavaju zvani\u010dnu politiku Vlade Ujedinjenog Kraljevstva <\/p>\n<p>&#8212; Posetite na\u0161 sajt, tamo delimo sve RETKE pri\u010de: <a href=\"http:\/\/rareandshare.net\/\">http:\/\/rareandshare.net\/<\/a> <\/p>","protected":false},"excerpt":{"rendered":"<p>Go\u0161\u0107a u 19. epizodi podcasta #rareandshare je Nade\u017eda Pejovi\u0107, predsednica Nacionalnog udru\u017eenja porfirija Srbije. Ovde razgovaramo sa onima koji su pokretali lavine doga\u0111aja, menjali okvire, pomerali granice do tada poznatog. \u017delimo da razgovaramo o temama koje su va\u017ene onima koji se suo\u010davaju sa retkim izazovima kao \u0161to su pravni i zakonski okviri, aspekat psiholo\u0161ke podr\u0161ke,&#8230;<\/p>","protected":false},"author":3,"featured_media":58414,"comment_status":"close","ping_status":"closed","sticky":false,"template":"","format":"audio","meta":{"footnotes":""},"categories":[457],"tags":[],"class_list":["post-98603","post","type-post","status-publish","format-audio","has-post-thumbnail","hentry","category-rare-and-share","post_format-post-format-audio"],"_links":{"self":[{"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/posts\/98603","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/comments?post=98603"}],"version-history":[{"count":1,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/posts\/98603\/revisions"}],"predecessor-version":[{"id":98604,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/posts\/98603\/revisions\/98604"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/media\/58414"}],"wp:attachment":[{"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/media?parent=98603"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/categories?post=98603"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/tags?post=98603"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}