{"id":94636,"date":"2023-11-19T18:00:00","date_gmt":"2023-11-19T16:00:00","guid":{"rendered":"https:\/\/podcast.rs\/dr-dimitrije-nikolic-revolucija-u-lecenju-spinalne-misicne-atrofije-agelast-206\/"},"modified":"2026-06-12T15:16:40","modified_gmt":"2026-06-12T13:16:40","slug":"dr-dimitrije-nikolic-revolucija-u-lecenju-spinalne-misicne-atrofije-agelast-206","status":"publish","type":"post","link":"https:\/\/podcast.rs\/en\/dr-dimitrije-nikolic-revolucija-u-lecenju-spinalne-misicne-atrofije-agelast-206\/","title":{"rendered":"Dr Dimitrije Nikoli\u0107: Revolucija u le\u010denju Spinalne mi\u0161i\u0107ne atrofije, Agelast 206"},"content":{"rendered":"

Podr\u017eite me na Patreonu: https:\/\/www.patreon.com\/agelast<\/a><\/p>\n

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Legend WW: https:\/\/www.legend.rs\/<\/a><\/p>\n

Za ve\u0107inu populacije SMA je bolest za koju su \u010duli zbog sms pomo\u0107i za obolelu decu, uglavnom kroz dru\u0161tvene mre\u017ee. Jo\u0161 jedna stvar koju znaju u vezi sa ovime je lek za ovu bolest, izme\u0111u ostalog, najskuplji lek na svetu od \u010dak 2,5 miliona dolara.<\/p>\n

SMA je skra\u0107enica od Spinalne mi\u0161i\u0107ne atrofije i genetski je nasledna bolest. Do pojave ovog leka, o\u010dekivani \u017eivotni vek je do druge godine \u017eivota. Ali \u010dak i ako se unutar tog perioda dobije lek, veliki deo \u0161tete je ve\u0107 nane\u0161en i, iako \u0107e \u017eivot biti spa\u0161en, u zavisnosti od toga koliko je napredovala bolest, zavisi i stepen kvaliteta budu\u0107eg \u017eivota. Zahvaljuju\u0107i na\u0161em gostu,\u00a0 Prof. dr Dimitriju Nikoli\u0107u,<\/strong> specijalisti pedijatrije i<\/strong> de\u010dijem neurologu <\/strong>u Tir\u0161ovoj u Beogradu, koji ima vi\u0161e od 20 godina iskustva u le\u010denju dece od razli\u010ditih neurolo\u0161kih oboljenja, ovaj lek za SMA je, najzad, odobren kroz zdravstveno osiguranje i od ove godine se dobija besplatno. Ali jo\u0161 jedna manje poznata stvar je uvedena zahvaljuju\u0107i njemu i timu ljudi sa kojima sara\u0111uje, a to je neonatalni skrinig\u00a0 zahvaljuju\u0107i kojem sada ova i druge bolesti mogu da se uhvate u predsimptomatskoj fazi, \u0161to zna\u010di da nakon davanja leka beba ima veliku \u0161ansu za potpunim oporavkom i postizanjem poptunog kvaliteta \u017eivota.<\/p>\n

Zalaganja prof. dr Dimitrija Nikoli\u0107a u ovoj oblasti je neprocenjivo. O SMA i drugim retkim bolestima, o razvoju medicine, terapija, borbi kroz administraciju, genskim terapijama, neonatalnom skriningu i mnogim drugim temama, u ovoj epizodi.<\/p>\n<\/p>\n

Audio: Marko Ignjatovi\u0107<\/p>\n

Instagram:<\/p>\n

Galeb Nika\u010devi\u0107 Hasci-Jare: https:\/\/www.instagram.com\/agelast_\/<\/a><\/p>\n

Sandra Planojevi\u0107: https:\/\/www.instagram.com\/run_lola_run_7\/<\/a><\/p>\n

Audio: Marko Ignjatovi\u0107<\/p>\n

Instagram:<\/p>\n

Galeb Nika\u010devi\u0107 Hasci-Jare: https:\/\/www.instagram.com\/agelast_\/<\/a><\/p>\n

Sandra Planojevi\u0107: https:\/\/www.instagram.com\/run_lola_run_7\/<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Podr\u017eite me na Patreonu: https:\/\/www.patreon.com\/agelast Jednokratne donacije kanalu: https:\/\/www.paypal.me\/agelastpodcast Kripto donacije: BTC: 1BdrToPVPRbMtzPkdX8z3wviTHZZyzqD7w ETH: 0xe189975f215102DD2e2442B060D00b524a608167 FB: https:\/\/www.facebook.com\/galebnikacevic Instagram: https:\/\/www.instagram.com\/agelast_\/ Twitter: https:\/\/twitter.com\/GalebNikacev A1: https:\/\/a1.rs\/privatni Legend WW: https:\/\/www.legend.rs\/ Za ve\u0107inu populacije SMA je bolest za koju su \u010duli zbog sms pomo\u0107i za obolelu decu, uglavnom kroz dru\u0161tvene mre\u017ee. Jo\u0161 jedna stvar koju znaju u vezi sa ovime…<\/p>","protected":false},"author":3,"featured_media":393003,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[27],"tags":[],"class_list":["post-94636","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-agelast"],"_links":{"self":[{"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/posts\/94636","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/comments?post=94636"}],"version-history":[{"count":1,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/posts\/94636\/revisions"}],"predecessor-version":[{"id":99680,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/posts\/94636\/revisions\/99680"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/media\/393003"}],"wp:attachment":[{"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/media?parent=94636"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/categories?post=94636"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/tags?post=94636"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}