{"id":60478,"date":"2022-11-12T10:00:00","date_gmt":"2022-11-12T09:00:00","guid":{"rendered":"https:\/\/podcast.rs\/?p=60478"},"modified":"2022-11-12T12:08:48","modified_gmt":"2022-11-12T10:08:48","slug":"rare-share-podkast-o-retkim-bolestima-dejan-pataki-ziska-podkast-155","status":"publish","type":"post","link":"https:\/\/podcast.rs\/en\/rare-share-podkast-o-retkim-bolestima-dejan-pataki-ziska-podkast-155\/","title":{"rendered":"RARE & SHARE: Podkast o retkim bolestima \/ Dejan Pataki \/ \u017dI\u0160KA podkast #155"},"content":{"rendered":"

Danas sa Dejanom Patakijem pri\u010damo o veoma bitnoj, ali ipak nepopularnoj temi: retkim bolestima. Znam \u0161ta sad mislite: \u201cjoj bre, ne mogu da se mra\u010dim, taman mi je produ\u017eeni vikend malo da se odmorim!\u201d I sasvim vas razumem, ve\u0107inu dana i ja bih pomislio isto.<\/p>\n

Dok me nije nazvao Dejan i podelio sa mnom podkast koji radi sa suprugom Anom. Rare & Share je biblioteka pri\u010da koje su herojske, ali obi\u010dne; te\u0161ke, ali inspirativne; potresne, ali motivi\u0161u\u0107e. Stvarno savetujem da preslu\u0161ate bar jednu epizodu.\u00a0<\/p>\n

A ako mi ne verujte, poslu\u0161ajte ovu prvo!<\/p>\n

00:00 Uvod
01:30 \u0160ta je Rare&Share?
10:30 Retke bolesti
29:00 Za\u0161to postoji tenzija izme\u0111u lekara i udru\u017eenja?
37:30 \u0160ta je naredni korak za retke bolesti u na\u0161oj zemlji?
53:10 Kakav je prijem kod publike?
01:01:00 Budu\u0107nost
01:04:00 Odjava<\/p>\n

Epizodu pripremili i prezentovali: Dejan Pataki i Goran Jankuloski<\/p>\n

Rare & Share mo\u017ee\u0161 pratiti na YouTube i svim audio platformama
https:\/\/www.youtube.com\/channel\/UCYeq634_3gowGUxPHNmjWWw
<\/a>https:\/\/podcast.rs\/show\/rare-and-share\/<\/a>\u00a0
https:\/\/open.spotify.com\/show\/6RdgAZWzxDwSynEdhYPye2<\/a>\u00a0<\/p>\n

Produkciju Rare & Share podkasta radi Retro Digital Agency:\u00a0
https:\/\/retrodigital.agency\/en\/home\/<\/a>\u00a0<\/p>\n

<\/p>\n

A na\u0161eg agencija \u017dI\u0160KA: www.ziska.rs<\/a>\u00a0<\/p>","protected":false},"excerpt":{"rendered":"

Danas sa Dejanom Patakijem pri\u010damo o veoma bitnoj, ali ipak nepopularnoj temi: retkim bolestima. Znam \u0161ta sad mislite: \u201cjoj bre, ne mogu da se mra\u010dim, taman mi je produ\u017eeni vikend malo da se odmorim!\u201d I sasvim vas razumem, ve\u0107inu dana i ja bih pomislio isto. Dok me nije nazvao Dejan i podelio sa mnom podkast…<\/p>","protected":false},"author":3,"featured_media":37916,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"audio","meta":{"footnotes":""},"categories":[179],"tags":[],"class_list":["post-60478","post","type-post","status-publish","format-audio","has-post-thumbnail","hentry","category-ziska-podkast","post_format-post-format-audio"],"_links":{"self":[{"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/posts\/60478","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/comments?post=60478"}],"version-history":[{"count":1,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/posts\/60478\/revisions"}],"predecessor-version":[{"id":60479,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/posts\/60478\/revisions\/60479"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/media\/37916"}],"wp:attachment":[{"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/media?parent=60478"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/categories?post=60478"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/podcast.rs\/en\/wp-json\/wp\/v2\/tags?post=60478"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}